02 October 2009

No laughing matter

As you may have read elsewhere, today is Cure JM day here in blog-land, an effort to raise awareness of juvenile myositis, a potentially fatal and always devastating group of autoimmune diseases affecting children.

This event was pulled together by my fellow blogger and friend Kevin, aka Always Home and Uncool, whose 9-year-old daughter has been living with this disease since before she was diagnosed 7 years ago today, which is also his wife's birthday.

You can hear more about Kevin's ultimately uplifting story at his (normally hilarious) blog, Always Home and Uncool, and also at the group blog we write for, Hot Dads. In short, he and his wife have chosen to take their daughter's lifelong illness and turn it into a positive for other families suffering with it, families who might not be as lucky in obtaining the necessary medical care to make life as comfortable as possible for their children.

His wife got this news as a birthday present 7 years ago, and today, though she may be the chair of the Cure JM foundation, she's being ordered to take the day off while the rest of us take up the cause. Happy Birthday!

To make a tax-deductible donation toward JM research, go to Kevin's FirstGiving page, or to the Cure JM donations page. And again, to read more, go to Cure JM or Always Home and Uncool.

1 comment:

Always Home and Uncool said...

What! No footnotes? I feel cheated.

Just kidding -- thanks for lending a hand, Dan, and calling me friend. K